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Preparing for End of Life

Nobody wants to think about when they will die, but death is something we all face at some point in our lives, be it a parent, a loved one, a friend or ourselves. By talking about it, we can make our own feelings known and be aware of what other people want when the time comes. Understanding what end of life choices there are will help you to help yourself and others take positive steps towards experiencing a ‘good death’ and ensuring that after-death wishes are made known and documented.

Here you will find information and guides to help you be informed, make plans, deal with current difficulties and begin the conversation with friends and loved ones. There is also information about local services and care homes, including care quality guidance and who to speak to when things go wrong. And, for those left behind, there is information on bereavement services and support, death registration, probate and funeral arrangements.

Updated December 2016

Local and national information about death, dying and planning ahead

Local information on planning for end of life

National websites and organisations

End of life care

All the Clinical commissioning Groups in Suffolk have information about end of life care 

Information can also be found from other organisations across Suffolk and the UK.

  • Macmillan and Marie Curie support families coping with cancer or a terminal illness in their own home

  • Local Hospices provide respite services and support

  • Here is a list of care providers and community health services who support people at the end of their lives 

  • Suffolk County Council’s Adult Social Care provides care services. See the Related Advice box on the right for more information

  • For someone with dementia This is me is a simple and practical tool that they, their carer or family members can use to tell staff about their needs, preferences, likes, dislikes and interests.

  • For someone with, or caring for someone with, a learning disability the Palliative Care for People with Learning Disabilities Network offers resources and contacts to help plan for the future and find care

  • The Therapy Directory has information and a list of therapists who provide complementary therapies for palliative care

  • Information about Do Not Attempt Resuscitation (DNAR) forms

Support for carers

The carers section has information on carer's assessments, wellbeing support, breaks, emergency planning and financial and legal advice

Having confidence and a voice in end of life care services

  • The Care Quality Commission, the independent regulator of health and social care in England, provides inspection reports of providers on its website

  • The Gold Standards Framework helps doctors, nurses and care assistants to provide the highest possible standard of care for patients in the last years of life

  • How to make a complaint about NHS care, treatment or services

  • Ipswich and East Suffolk and West Suffolk Clinical commissioning Groups provide the opportunity for you to find out what the CCGs and partner organisations are currently working on, to get involved and have your say

  • Healthwatch Suffolk gathers and represents the views of people in Suffolk to help them influence local health and care services. They also provide information and signposting to help navigate the health and social care system and understand what to do when things go wrong.

Coping when a loved one dies

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