Our vision is to improve the lives of those affected by neurofibromatosis. The authoritative voice of Neurofibromatosis in the UK. Every day a baby is born in the UK with Neurofibromatosis – there are over 25,000 people in the UK with the condition and as yet, there is no cure.
Neurofibromatosis is a term for a group of conditions affecting mainly the nervous system and skin. There are differences in the three main groups: Neurofibromatosis type 1 (NF1), Neurofibromatosis type 2 (NF2) and Schwannomatosis.