Skip to main content

CORONAVIRUS UPDATE:

Organisations offering activities and support. For local information go to Coronavirus Information,
Home But Not Alone phone line: 0800 876 6926,
or go to Community Action Suffolk to see how local groups can help isolated people.

Rare Dementia Support

General Details

Our support website aims to provide information and support to people with Frontotemporal Dementia (FTD), and their families, friends and healthcare professionals.

When faced with the diagnosis of a relatively rare disease in a family member or friend, planning a future for carers is hard. There are few facilities tailored for the younger sufferer, particularly for people with FTD, which adds to the distress and burden that this and other similar diseases cause. We put you in touch with people who understand.

Regional Meetings
Regional contact facilitators provide a voluntary contact service from a position of either personal or professional experience of FTD. They are not employed by the support group but may be able to offer an awareness of regional facilities as well as their personal/professional experience on a voluntary basis for members who so wish to make contact.

Who to contact

Email
contact@raredementiasupport.org
Website
http://www.raredementiasupport.org/ftd/
Social Media
 Follow us on Twitter

Additional contact

Additional Website
Regional meetings

Where to go

Area served
Suffolk

Other details

Age Groups
Adults
Last Updated
19/02/2020

More like this

Dementia
Dementia
Older people
Aphasia
Alcohol use and abuse
Alcohol use and abuse

Reviews

Sign in to write a review

Back to top