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The National Organisation for Foetal Alcohol Syndrome | Community Directory

The National Organisation for Foetal Alcohol Syndrome

General Details

NOFAS-UK (The National Organisation for Foetal Alcohol Syndrome-UK) is dedicated to supporting people affected by Foetal Alcohol Spectrum Disorders (FASD), their families and communities. It promotes education for professionals and public awareness about the risks of alcohol consumption during pregnancy. NOFAS-UK is a source for information on FASD to the general public, press and to medical and educational professionals.

The NOFAS-UK Helpline responds to enquiries from parents, family members, carers and others needing advice or referrals for children with FASD disabilities. The Helpline also receives calls from pregnant women, midwives and medical professionals. In addition, NOFAS-UK works in cooperation with sister organisations in the FASD UK Alliance to co-administer the vibrant FASD UK Facebook group that supports more than 1,900 families.

Foetal Alcohol Spectrum Disorders (FASD) are caused by prenatal alcohol exposure. Alcohol can cause more damage to an unborn baby than any other drug. Alcohol-free pregnancy is the healthiest and safest option. If you are pregnant, or thinking of becoming pregnant, and want to know more about pregnancy and alcohol, please get in touch through our helpline or email us.

Who to contact

020 8458 5951
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022 China Works
100 Black Prince Road

Where to go

Area served
All Suffolk

Other details

Referral required?
Age Groups
16-25 years, Children (5-11), Adults, Young people

Accreditation details
Registered charity number: 1101935


FASD Characteristics

Alcohol and Brain Development
Although alcohol can affect the development of all cells and organs, the brain is particularly vulnerable to the effects of alcohol exposure.

As a result, children and adults with FASD often experience difficulties in dealing with information. They may find it hard to translate hearing into doing, thinking into saying, reading into speaking or feeling into words.

They may also have difficulty in applying specific learning to new experiences or situations and in perceiving similarities and differences. This means they may not be able to see patterns, predict events or make judgments.

Characteristics and Physical Effects
We cannot see the neurological effects of FASD, but there are a number of invisible characteristics and many possible physical effects.

For more information, see the website.

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Experience of including people with special educational needs and disabilities

We have a national helpline which responds to enquiries from parents, family members, carers and others needing advice or referrals for children with FASD disabilities. We can advise people to recognise the signs of FAS, what happens after diagnosis, and ways families and carers can adapt to the behaviour of a child or an adult with FASD.

Please see our website for further information and resources or call our helpline on 020 8458 5951.

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