We are here first and foremost to provide information and support services for families who have children with Goldenhar Syndrome. The aims of the group are to put families in touch with other families who have children or family members with similar problems.
Give parents and patients viewpoints about the syndrome through a regular newsletter.
Provide a link to other organisations who might be able to help families.
Pass on some general information from specialists in the medical profession. Offer practical support for common issues