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Organisations offering activities and support. For local information go to Coronavirus information.

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Goldenhar Family Support Group

General Details

We are here first and foremost to provide information and support services for families who have children with Goldenhar Syndrome. The aims of the group are to put families in touch with other families who have children or family members with similar problems.

Give parents and patients viewpoints about the syndrome through a regular newsletter.
Provide a link to other organisations who might be able to help families.

Pass on some general information from specialists in the medical profession. Offer practical support for common issues

Who to contact

Name: The Secretary
Email: info@goldenhar.org.uk
Website: http://www.goldenhar.org.uk

Where to go

Name: Goldenhar Support Group
Address: 43 Bemersley Road
Stoke-on-trent
Postcode: ST6 8JF
Area served: All Suffolk
Restrictions to access: Please visit our web site for all the practical information we can provide, membership is required for just £10.00 per year to cover admin costs.

Days & Times

Contact is usually made in the evenings and weekends.

Other details

Age Groups: Pre-school, Children (5-11), Adults, Young people
Notes: If you would like to talk to someone you will need to send us an email first. As soon as we receive your email we will endeavor to contact you as soon as possible. You can email us using your computer or by completing our on-line form. Please remember that we are just normal families running the group. We don't have offices, staff and dedicated telephone lines so we don't advertise our contact numbers on the internet.
Last Updated: 23/09/2019