We are here first and foremost to provide information and support services for families who have children with Goldenhar Syndrome. The aims of the group are to put families in touch with other families who have children or family members with similar problems. Give parents and patients viewpoints about the syndrome through a regular newsletter.
Provide a link to other organisations who might be able to help families. Pass on some general information from specialists in the medical profession. Offer practical support for common issues
Goldenhar Family Support Group
Who to contact
- Name
- The Secretary
- info@goldenhar.org.uk
- Website
-
http://www.goldenhar.org.uk
- Address
-
Goldenhar Support Group
43 Bemersley Road
Cornhill Norton
Stoke on Trent
Staffordshire - Postcode
- ST6 8JF
Where to go
- Name
- Goldenhar Family Support Group
- Address
-
Durrington
Ridgeway Close
Woking
Surrey - Postcode
- GU21 4RD
- Area served
- Suffolk
- Restrictions to access
- Please visit our web site for all the practical information we can provide, membership is required for just £10.00 per year to cover admin costs.
Days & Times
- Contact is usually made in the evenings and weekends.
Other details
- Age Groups
- Pre-school, Children (5-11), Adults, Young people
- Notes
If you would like to talk to someone you will need to send us an email first. As soon as we receive your email we will endeavor to contact you as soon as possible. You can email us using your computer or by completing our on-line form. Please remember that we are just normal families running the group. We don't have offices, staff and dedicated telephone lines so we don't advertise our contact numbers on the internet.
- Last Updated
- 11/08/2015
Local Offer
- Disabled children
- Disabled children
- Disabled children
- Family support