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Rare Dementia Support | Community Directory

Rare Dementia Support

General Details

Our support website aims to provide information and support to people with Frontotemporal Dementia (FTD), and their families, friends and healthcare professionals.

When faced with the diagnosis of a relatively rare disease in a family member or friend, planning a future for carers is hard. There are few facilities tailored for the younger sufferer, particularly for people with FTD, which adds to the distress and burden that this and other similar diseases cause. We put you in touch with people who understand.

Regional Meetings
Regional contact facilitators provide a voluntary contact service from a position of either personal or professional experience of FTD. They are not employed by the support group but may be able to offer an awareness of regional facilities as well as their personal/professional experience on a voluntary basis for members who so wish to make contact.

Who to contact

Social Media
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Additional contact

Additional Website
Regional meetings

Where to go

Area served
All Suffolk

Other details

Age Groups
Last Updated

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