We are the national charity working to improve the lives of patients and families affected by genetic, rare and undiagnosed conditions. We are an alliance of over 200 patient organisations.
We produce information for patients, families and anyone interested in genetic conditions.
On our website you’ll find information about the basics of genetics and inheritance of genetic conditions. You can also find information about research, different types of genetic testing, genetic services in the UK and reproductive techniques for people at risk of passing on a genetic condition, as well as information for living with a genetic condition. If you are looking for condition specific information our members might be able to help.