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Rare Chromosome and Gene Disorder Support Group (Unique)

Unique is a source of information and support to families and individuals affected by any rare chromosome or newly discovered gene disorder and to the professionals who work with them. Established in 1984, Unique is a UK-based charity (1110661) but welcomes members worldwide. Membership of Unique is free - the group receives no government funding and is heavily reliant on donations and fundraising to continue its work.

Unique, offers contact with families with an affected member who has the same rare chromosome disorder or, who has similar symptoms or practical concerns, irrespective of specific chromosome  or gene disorder. It produces a comprehensive range of family-friendly, medically-verified information guides on a variety of rare chromosome disorders.  Unique co-ordinates families to assist in research and has private facebook groups for registered members. It publishes a magazine three times a year. Unique hosts occasional study and family conference weekends. Unique has over 18,000 affected members and many relevant professional members worldwide in over 100 countries.  A network of local contacts worldwide promote awareness of chromosome disorders and Unique to the general public and professionals.

Who to contact

Name
Dr Beverly Searle
Position
Chief Executive Officer
Telephone
01883 723356
Email
info@rarechromo.org
Website
http://www.rarechromo.org
Social Media
 Like us on Facebook
 Follow us on Twitter
Address
The Stables
Station Road West
Oxted
Surrey
Postcode
RH8 9EE

Where to go

Name
The Stables
Address
Station Road West
Oxted
Surrey
Postcode
RH8 9EE
Area served
Suffolk
Parking available
No

Other details

Age Groups
Pre-school, Children (5-11), Adults, Young people
Notes

We can provide information and links with anyone affected by a rare chromosome disorder. We hold occasional family events, workshops and have private social networking groups for our members

Last Updated
02/12/2018

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